On a quiet afternoon..
Elly reclines comfortably in their living room, her favorite show playing softly in the background. As she watches, Walt quietly grabs a chair and sits beside her. The moment he settles in, her face lights up, her smile radiating warmth that seems to fill the entire room. For Walt, this simple act of being together is a reminder of the special bond they share, one that started back in 2017.
“We had our first date on St. Patrick’s Day.” Walt recalls, his eyes softening as he remembers that day. “When you know, you just know.” he says, his voice full of affection. “We both just knew. By April, we were married.” It was a whirlwind romance, but one that felt completely right.
After their marriage, Elly made the decision to stay home and care for their house-and, as Walt often jokes, to take care of him. “Which can be a full-time job,” he adds with a playful grin. Elly smiles, her eyes lighting up once more. Their life together was everything they’d hoped for-peaceful, fulfilling, and full of love.
But soon after their marriage, something started to change. In 2020, Elly began experiencing unusual symptoms, and the couple began a difficult search for answers. After a year of uncertainty, the diagnosis came in 2021: Elly had a rare, often misunderstood disease, one so rare that only 9 in one million people are diagnosed with it. The road ahead seemed daunting, especially living in rural Wyoming, where medical resources were limited.
“We didn’t have much support for what we were going through,” Walt explains. “That was, until hospice came into our lives.
Walt, now Elly’s full-time caregiver, takes on many responsibilities-ensuring she’s comfortable, managing her medications, and being her emotional support. “There’s so much to handle day-to-day. It can be overwhelming at times, Walt shares. “But it’s something I do with love. It’s not easy, but it’s part of our journey together.”
The decision to bring hospice into their lives as soon as possible has been crucial for both of them. “Hospice has been a blessing for us, Walt says.
“Having them come in early allowed us to build a strong relationship with our care team. We were able to form connections with the nurses, social workers, and chaplains who have supported us every step of the way. That connection has been vital in helping us navigate this difficult journey.”
The support and advocacy they’ve received from hospice have been invaluable. “Hospice didn’t just provide care for Elly, Walt explains. “They provided care for both of us. They’re there for me too, supporting me, offering advice, and helping with the emotional and physical toll of caregiving.”
For Walt, one word sums up the entire experience: advocacy. “I’ve always been a strong advocate for Elly, both before and during this journey. There have been so many roadblocks along the way, but hospice has been an advocate for us too. They’ve stood by us, making sure we both have what we need to cope with the challenges.”
“Those who need advocacy, compassionate care, and all the support hospice provides should take advantage of these services as soon as possible,” Walt urges. “Hospice has truly made this journey easier for both of us, and I’m so grateful for their unwavering care.”
As Walt sits beside Elly in their cozy living room, watching her smile, it’s clear that this journey- though filled with challenges-has been one of love, advocacy, and the power of compassionate care. With hospice by their side, Walt and Elly continue to navigate their path, knowing they have the support they need every step of the way.
Your support of our nonprofit makes it possible for more families like Walt and Elly’s to receive the compassionate care and advocacy they so deeply deserve. By donating today, you help ensure that others facing similar challenges have the support they need to navigate their journeys with dignity and peace. Please consider making a gift that will provide comfort, care, and advocacy to families in need. Thank you for your generosity and for making a lasting difference in the lives of those who need it most.